I hope this works!! I have been trying to sign onto my blog for at least a YEAR. !!  Forgot my password and  Google would only TEXT it to me... I DON'T HAVE TEXTING ON MY PHONE!!!. I don't even know where to start. I have been on my computer daily thanks to the Laptop that I bought, so I don't have to get my big butt off of my recliner and go into the next room to go online!!  I really don't know what to say I am just flabberghasted that I got onto my blog so I felt I had to type SOMETHING!!  Now that I know that i am back in business I will think of something worth your while to read... I HOPE

Father's Day Med Scare.

last summer (2011) . I got something that is rare for me , but it happens... A blister. So I just take care of it diligently and after a while, it goes away. well, this summer, actually the end of the school, it happened again... so i went into doctor mode. using bacitracin and covering it.( I don't as a rule go to the doctor, because in the past, I've healed pretty well on my own... something which is rare for someone with Spina Bifida. Well one Sunday morning (Father's day to be specific), I got up went into the bathroom and didn't like what i saw. my blister was now a bloody infected cut.. ( practically overnight.!). So I called my mother into my bathroom, she took one look at it and took action. She couldn't call the Doctor or go there, because it was Sunday and the office was closed; she also thought it was not good to wait for Monday so off we went to the emergency room at St Charles Hospital; Mom drove me because we wanted to go to this Emergency room since all my Orthopedic records were there. .we got there and there was no Orthopedist on duty so they gave me a Podiatrist. I never used one before because my Orthopedic took care of all of my foot issues. So the doctor came in and took one look at my foot and next thing I knew I was admitted . The next day or so I was seen by an 'INFECTIOUS DISEASE SPECIALIST' ( CUE PANIC). on one of the days i was sent down for a PICC line. I was in the hospital a week and sent home.. I was on IV antibiotics for the month of July and given a clean bill of health by the end of the summer.I was still going to the podiatrist for the toe which still wasn't healing 100%. School started up again in September and  about a month into it, The 'toe from hell' struck again so i went to the doctor and we decided it was best to just remove the toe!!

surgery ( take 2)

Well, I finally had my surgery. I was home for a week with a PICC line that my mother took care of. went back into the hospital and had the surgery. The day of the surgery I went down and the OR seemed so bright, I am so used to dark scary OR's. I saw all the team there Dr Felderman, Dr Garbus and others. They made sure they positioned me OK before putting me under. That was a breeze since I had my PICC line and they didn't have to go hunting for a vein. I woke up in recovery and went back to the room. I seemed pretty awake. Mom stayed with me on a chair in the room 24/7. II was there another week, half the time still on a liquid diet (UGH). Since the surgery I had mucous in my throat that I couldn't cough up because of my stitches. I felt like I was choking and the nurse called in the Respiratory team who tried to put a tube down my nose into my throat; That didn't go over very well, ...I couldn't stop gagging and finally the guy gave up. Eventually I went to sleep and the next day one of the nurses came in and was coaching me on coughing. I went home. I came home and still couldn’t go back to work.I missed the end of the school year and feel really bummed about it. It still doesn’t feel like summer time to me.

another surgery!

Well, Something has happened that hasn't happened since 1997.... I am Hospital bound!!! I went to the doctor on a Wednesday for a nasty Bladder infection ( very common in those with Spina Bifida) and when he catheterized me he  didn't like what he saw so he sent me to see a Colo-Rectal specialist the next day. when I got to the Colo-rectal  Doctor ( who by the way is very cute) he said he was admitting me to the hospital. --RIGHT FROM THE OFFICE!! So last Thursday I found myself in Winthrop, on a liquid diet, Pending surgery a week later. I had to go to Radiology and get a PICC line put in . the procedure wasn't that bad and now i don't need to be poked with needles, everything goes into the port ( Well, ALMOST everything, I still need finger pricks for blood sugars and shots in the tummy for anti clotting meds) well, the morning of the surgery came and next thing I know my doctor came in to say the surgery was postponed...TILL NEXT WEEK!!!  So I am home now till next week, So much for EMERGENCY surgery!!!

Doin' the Laundry

well I didn't realize how long it's been since I've blogged about my new surroundings.  I am actually a pro at the laundry now!! I've done lots of successful loads. -- Dark, white, stain removal, folded, put back into draws. etc!!! Wish I had made a bet with my family, as to if I was goimg to follow through,.....I'd be rich!!

My New Bedroom and washer/dryer

been sleeping in my room now for a month. a few weeks ago Joe set up my washer/dryer the day before he had to go on a trip. well, mom and I were alone in the house and decided to try it out. we ( I ) put the clothes in and the soap, shut the door turned the dials and proceeded to go into the kitchen to eat dinner. when all of a sudden we heard this loud BANGING!!! We went into the room and saw the washer/dryer going crazy swaying back and forth and actually moving across the room ( I thought this stuff only happened on cheezy '70's sitcom  episodes )  we rebalanced the clothes and shut the door. a few minutes later the same thing happened, so mom ended up finishing  the clothes  down the basement. now we just have to wait for Joe to get home to see what the heck happened!!!

My New Bedroom Christmas Day

Woke up in my new bedroom Christmas morning. I'm not used to all the windows so it was very bright. But very cozy. went into the new big bathroom and into the shower; It was so easy!! The inspector came and gave a thumbs up to everything... except the ramp ( which we have had for 17 YEARS!!!)  he said the new code calls for a metal railing to go along the ramp and steps. So Joe went out and bought the necessary materials. ( complying to NYC code!) it was huge metal piping, not very decorative. I didn't mind but I thought mom was going to have a stroke. but, when they saw how easy it was for me to ascend the stairs she accepted it. so all that was left was to wait for the inspector... again!!
The inspector came for the second time and we were all set for him to approve the railing. when he left the house he called Joe and UGH!!! the railing has to go along the WHOLE deck not just the steps. so we are still not approved. Update to come!!!